CONTACT
Staff
We are the team at Rare Diseases Sweden. Please feel free to contact us if you have any questions. We do not provide medical advice. For medical questions, please contact CSD i Samverkan.
Executive Director
Malin Grände
Contact me
Phone: 070 332 68 78
E-mail: malin.grande@sallsyntadiagnoser.se
Advocacy, International Affairs and Research
Stephanie Juran
Contact me
Phone: 070 578 80 28
E-mail: stephanie.juran@sallsyntadiagnoser.se
Project Coordinator for Den sällsynt viktiga elevhälsan and our youth section
Hanna Gustafsson
Contact me
Phone: 072 529 77 43
E-mail : hanna.gustafsson@sallsyntadiagnoser.se
Finance and Membership Enquiries
Karin Högvall
Contact me
Phone: 072 269 62 04
Project Manager for Den sällsynt viktiga elevhälsan and our youth section
Evelina Rosén
Contact me
Phone: 073 070 89 11
Email: evelina.rosen@sallsyntadiagnoser.se
Membership Manager
Kerstin Gustafsson
Contact me regarding membership questions.
Phone: 072 231 64 79
E-mail: kerstin.gustafsson@sallsyntadiagnoser.se
Regional operations and Patient Representatives
Lisa Wallenius
Regional operations and Patient Representatives
Marit Sundin
Board of Directors 2026-2027
Rare Diseases Sweden's board of directors consists of eleven elected representatives during the financial year.
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